INVENTS at the World Orphan Drug Congress Europe 2025 !

INVENTS at the World Orphan Drug Congress Europe 2025 !

On October 27th 2025, INVENTS members took part in the pre-conference workshop at WODC2025 in Amsterdam, organized by ERDERA.
Sarah Zohar, Vincent Damotte, Laurens Sluijterman presented the objectives of the project, with a particular focus on the methods, data sharing strategy, and the evaluation framework that we are developing within INVENTS.
An inspiring session was also dedicated to the role of the Pediatric Patients Expert Group, established as part of INVENTS by Donato Bonifazi and Viviana Giannuzzi, featuring the participation and an excellent presentation by one of the children involved in the group.

Photo credits: Jordi Vaqué