Recruitment

Are you a young person aged 12 to 18 living with a rare disease or family of someone who is? Are you a young person with an interest in healthcare, biomedical research, and the rights of young patients? Are you willing to help make paediatric rare disease research more inclusive and patient-centred by co-designing tools and validating outputs alongside leading European researchers, clinicians, regulatory agencies, and pharmaceutical companies?

If yes, join the paediatric Patient Expert Group (PEG) second cohort!

Young people’s active participation in paediatric research and drug development ensures their priorities shape decisions about their own health.

Are you an adolescent aged from 12 to 18 living with arthritis (including rare juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis, systemic juvenile idiopathic arthritis, giant cell arteritis) or multiple sclerosis? Are you interested in getting the skills to actively participate in scientific research to contribute to developing and shape the themes of #health, #raredisease, innovative research, #healthcare, and children’s rights?

Our initiative to set up a paediatric Patient Expert Group (PEG) is the perfect match for you!

As a member of this group, you will be involved in training courses (online and face-to-face), practical activities, and ad hoc tool preparation. Your mission will be to support the researchers participating in the #INVENTS project with your opinions and suggestions and to make the project a success for you and other children suffering from a rare disease.